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hey, that is great to hear that you had help with your boy! My daughter (the little girl mentioned in the previous comment) is starting to get help from the community also and like my uncle asked, we really need as much information as we can get. Any help will be appreciated, thank you!
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hello my niece has been diagnosed with Septo optic dysplasia and we are wanting to raise money for her she has been aproved to go to china but ireally would like to talk to you please email me and a number where i can speak to directly i really need this please help me and God Bless You
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Hello. My name is Jolie Walker. When my step daughter was 4 months old we found out she had SOD. The doctors told us that her optic nerve only developed 10% and that the most she would see is dark shadows. We are very interested in the stem cell transplant. Our little girl will be one next week and we do not want to waste any more time just waiting for a miracle to happen. Please if anyone could help us get the journey going to help baby Kailyn see feel free to email me at jolie.duke@att.net about any information regarding it.
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hi my name is nicole. im from chicago and i just found out my son jonathan has onh. he just turned 7 months yesterday. and its been a really hard couple of weeks but im very hopeful. i hope cameron is doing great. which it looks like from the pics. and god bless you and your family!
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It was so good to see the family. Blessings
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Hello, it´s been so exciting to visit your page because we´re in the rocess of raising funds to take our daughter to China. We´re from Mexico and Fernanda has ONH. She´s 6 years old and we hope with all our hearts to be able to say the same things as you are now. Thanks for sharing your experience! God Bless You!
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I am also hoping to get stem cell treatment for my granddaughter. You are all an inspiration. babyo.weebly.com/
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Safe stem cells in the U.S. NOW!
There is a group of physicians, patients and other interested people working together to get treatment with adult stem cells legalized in the U.S. as it should be. The organization was formed in response to the Food and Drug Administration's (FDA) recent position that the adult stem cells found in everyone’s body are drugs. A person's cells (autologous) should be their own and NOT regulated by the FDA. That is one of the major reasons why most stem cell clinics are overseas. This stance is ridiculous and is costing millions of lives while sick Americans wait for the use of their own stem cells which would improve their quality of life. The FDA is not protecting us, but hurting us. Please ask your family and friends to sign up ("JOIN"), and get as many doctors to sign up as well. Please see The American Stem Cell Therapy Association (ASCTA) site, and the associated Safe Stem Cells Now patient site.
Patient Site: www.safestemcells.org
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hi carol
i have a 5month old dauhghter and im in the early process of hopefullly having treatment in china, i would appreciate if you could contact me as i would like to ask you some questions
you can reach me on the above email address
thank you so much
maria
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Dear Mrs. Carol Petersen
I would like to talk to you as well
Condition Mixed Cerebral Palsy
I need your help please email me
Best wishes to you Cameron and
the rest of your family
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